Epilepsy Update

It’s been a while since I’ve written about Epilepsy & my family.
It is still a struggle for my son and we’ve had some good days and not so good ones.

Since my post in 2019, we’ve been through a lot. Medication changes, seizures, new jobs, and my son is now a Senior in High School.
He was lucky enough to have 257 days between Grand Mal Seizures but that ended this past Autumn. He had another just 2 months after while at work.
We are now working with his nuerologists and he is undergoing a long video EEG study. Literally as I type this!

He doesn’t like to publicize his condition, so I am respecting his privacy with no photos. We hope to find out more about his seizure type and hopefully get him to a point where they are under control.

He hopes to go to College this fall, but I fear we cannot send him far as he cannot drive and he is still in denial about the small seizures.

We’ve had the doctores and close family and friends ask if he can sense the seizures coming on. The answer is no. There is no Aura, no warning, no weird smell, or headache. One minute he’s fine and the next, well, it depends on the seizure. Most of them he is unaware that they even happen.

It’s difficult to tell him that he can’t do certain things because of the Epilepsy. He should never skydive, a desire of his. We’re still a year out from any type of driving, a milestone he has not been able to attain.

He may never be seizure free, but we are doing everything we can to find the right course of action.